SADS UK Fundraising Statement for Covid-19
SADS UK relies heavily on our fundraisers to help the charity in our aims to save lives due to sudden cardiac death. We thank you for your support creating your own event or taking part in organised events to raise funds for SADS UK.
Currently the world is in an unprecedented situation grappling with a global pandemic of Covid-19. Public Health is of paramount importance to the charity.
It is possible that organised events may be postponed or cancelled. SADS UK will, of course, let you know the status of these events as information is received.
We ask our fundraisers to let sponsors know that your intention is to compete in the event you have signed up for, or raise funds for the event you intend to hold. However, you should let them know that in these uncertain times there is the possibility that it could be postponed or cancelled and that they will be sponsoring you knowing that there is a risk that you cannot take part, or the event you are holding may not go ahead. We are sure that most sponsors will still be happy to donate to the work of the charity.
SADS UK and our Trustees have taken the decision to assist our fundraisers working positively towards the events during the year until such time that we are advised it should not go ahead as planned.
Related Items
Stride with SADS UK to STOP SADS 2024
We are so pleased to let you know that SADS UK are holding another Stride to STOP SADS event this year on Sunday 19th May 2024, start time between 10am and 11am.
I thought you’d like to know that through the funds raised last year, we have been able to continue with our aims and objectives, including:
© Research into conditions that can cause SADS
© Support for families impacted by SADS
© Teaching CPR and defibrillator training in the community
© Installing Community Public Access Defibrillators
This year, the event has gained significant visibility on social media, thanks to our members support. Lots of people have said they would like to join Stride this year, so we thought we would like to invite you asap, as places are limited. We will be having a SADS family group photo at midday this year, Andrew is looking forward to taking a photo of all of us!
The SADS Team will be at the Gazebo near the Bandstand, eager to see you, as well as other SADS family supporters who come along on the day. As well as the walk, there’s plenty of time to relax and picnic, or choose your meal from the Serpentine Bar and Kitchen, the Colicci Serpentine Lido coffee house or one of the stalls around the lake – we’re spoilt for choice. You can even buy an ice cream if we have our usual beautiful weather, fingers crossed. We noticed that beer and wine went down quite well too and there will be plenty of free sweet goodies at the Gazebo.
Children and pets are welcome (as long as dogs are kept on leads) as the stroll around the Serpentine Lake is quite an easy walk.
I’ve attached the Stride Registration Form and look forward to hearing from you soon.
International Paediatric Brugada Registry
International Paediatric Brugada Registry: Survey of the Diagnostic approaches around the world
Presently, it is still debated how to correctly diagnose children with Brugada syndrome and how to assess their risk for dangerous arrhythmic events. Many different strategies exist around the world. To get an up-to-date picture of diagnostic strategies employed we sent out a survey to all participating centres of the International Paediatric Brugada Registry. The results are now available, showing, on the whole, an increasing consensus on certain diagnostic practises, such as the drug challenge testing, and a strong increase in family screening. Genetic testing is becoming increasingly important and is widely used. However, much has still to be learned, before we can interpret many of these results with certainty.
The International Paediatric Brugada Registry strives to provide data to fill this gap in knowledge. In 2024 the first big datasets will be ready for analysis.
SADS UK are pleased to have provided funding to support this vital research.
Bleed kits
There have been horrendous stories about stabbings in London and other cities; most recently a young boy Alfie Lewis sadly died after being stabbed in Leeds.
SADS UK have Bleed Kits which are available to go into the SADS UK cabinet, together with defibrillator. The Bleed Kit is also available separately for purchase, the bleed kits are for severe bleeding, as in a stabbing or traumatic accident causing chaotic bleeding.
Abolishing VAT on defibs
During September and Shoctober, the cardiac charity SADS UK is doubling down on our plea to Government to abolish VAT on defibrillators, enabling wider access to defibrillators and consequently saving more lives. Contact SADS UK if you would be happy to speak with the media. Supporting the BHTA - SADS UK, members and supporters are writing to their MPs urging their support for defibrillators to be VAT exempt. SADS UK will provide a template letter and to help you get your story to your local MP. Email: [email protected]
Bev Brown skydiving fundraiser
Enormous thanks go to Bev Brown for undertaking a tandem skydive in memory of her brother Luke Organ. You can take part in a similar event by contacting Skyline events to let them know you would like to support SADS UK. email [email protected]
3 peaks mountain climb
Enormous thanks go to Mikey and Joe who climbed the Three Peaks in their Stride to STOP SADS. A fantastic challenge and very proud moment as they reach their final peak!
Stride for SADS UK
What a fantastic day we had for the SADS UK Stride to STOP SADS walk around the Serpentine in Hyde Park. Lisa said, it was a great day, I met with other Mum's and parents who'd lost children to SADS. It was good to speak with them, the 19th May 2024 is already a firm date in my diary.
Sammy Holland marathon
SADS UK London Marathon runners are doing well; Sammy Holland has been amazing, recently taking up a place after a runner needed to withdraw due to ill health. Sammy is really smashing it!
Rob Gundry London marathon
SADS UK London Marathon runners are doing well; Rob Gundry is an inspiration to all, living with a cardiac condition and an internal defibrillator he has really racked up the miles and sponsorship.
Joe Spooner fundraiser darts tournament
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Joe Spooner fundraiser darts tournament. Another fantastic Darts Tournament held in memory of Joe Spooner. It say 32 men and 9 ladies battle it out
Defibrillator donated in memory of Clare Yates
SADS UK are pleased to have supported Mark Yates in donating a defibrillator to Buttercup Tea Rooms, Billesdon, in loving memory of his wife Clare who passed away in November 2021. Clare worked at Buttercups Tea Room and Mark wanted to help safeguard her work colleagues and equally the significant number of visitors they have on site.
Annual Joe Spooner Darts Tournament 2022
SADS UK thanks Tracey, Stephen and everyone who supported the Annual Joe Spooner Darts Tournament. Joe tragically passed away aged 15 in 2005 and since his death Tracey and Stephen have supported SADS UK and raised awareness and funds in his memory which has enabled over 35 defibrillators to be donated to schools and communities in memory of Joe to help save lives.
FEBRUARY IS NATIONAL HEART MONTH
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February 2022 is National Heart Month - an annual event to raise awareness and encourage people to look after their heart. SADS UK invites members to get involved in a number of different ways : raising awareness and funds to place a Community Public Access Defibrillator to help save lives, Wear it Red Day on 14th February 2022, hold a fundraising event for SADS UK on Valentines Day, share your story on social media and tag @SADSUK. ♥
SADS UK New Patron Dr Amir Khan GP
PATRON ANNOUNCEMENT -SADS UK
SADS UK are proud to have the support of our new Patron Dr. Amir Khan GP(MBCHB (Hons) MRCGP DCH DRCOG PGCE DipDiab) Dr Khan is the Resident Doctor on ITV’s Lorraine and Good Morning Britain. Dr Khan says “As a GP in my practice in Bradford I have experienced first-hand the devastating effect of SADS on individuals and families and have supported families through this difficult time. I endorse the work of SADS UK and their commitment to families who have been affected by SADS or are living with inherited cardiac conditions. SADS UK have worked for over 20 years placing defibrillators in schools, sports centres and communities to help save lives should a person suffer a cardiac arrest. I am proud to become a Patron of such an important charity.”
Defibrillator donated to The Crown, Cowley In Memory of Charlie Naughton
Charlie Naughton tragically passed away from SADS on 29th June 2021 aged just 29. He was in The Crown, Cowley, London watching the England vs Germany game when Harry Kane scored he suddenly collapsed while others around him were celebrating. The ambulance services worked tirelessly on Charlie for 3 hours, however they could not save him.
SADS UK Exhibiting at the SADS Foundation 2021 Virtual Annual Conference on 6th and 7th November 2021
SADS UK is pleased to be exhibiting via a Virtual Booth at the SADS (Sudden Arrhythmia Death Syndromes) Foundation 2021 Virtual Annual Conference, which will be held online on November 6th and 7th!
Support SADS UK in 2021
SADS UK has places at the following events so if you and your family and friends want to raise awareness and funds for SADS UK and be part of something special get in touch. Each participant will receive a SADS UK fundraising pack and t-shirt. 
SADS UK Patron receives Rare Award
SADS UK staff and supporters congratulate Dr Andrew Grace, who has been awarded the title of Honorary Professor of Experimental Cardiology by the University of Cambridge.
SADS UK Heartwize Project Statement for Covid 19
The cardiac charity SADS UK is delighted that the Heartwize Project teaching Year 10 pupils CPR & defibrillation has been so well received by schools in Essex.
Resuscitation Council UK Statements on COVID-19
Resuscitation Council UK is monitoring closely COVID-19’s impact in the UK.
https://www.resus.org.uk/media/statements/resuscitation-council-uk-statements-on-covid-19-coronavirus-cpr-and-resuscitation/?fbclid=IwAR3YlJwrBedMwSg4OOxTSyaSJz_2RKChRyoKFfshrCEZL7s3XpJHuJtpMR0
Please follow us on Facebook and Twitter
Our social media channels provide important information about the charity and new medical developments.
Sudden Death - National Guidelines
Back in 2004, SADS UK were instrumental in bringing about an extension to the Department of Health National Service Framework for coronary heart disease.
Newsletter June 2015
SADS UK latest newsletter, updating our subscribers with the latest medical information as well as events and charity information, is out!
Chief Coroner Reported to be Reinstated
SADS UK Responded to the Public Bodies Bill and the draft charter for the current coroner service.
