International Paediatric Brugada Registry
International Paediatric Brugada Registry: Survey of the Diagnostic approaches around the world
Presently, it is still debated how to correctly diagnose children with Brugada syndrome and how to assess their risk for dangerous arrhythmic events. Many different strategies exist around the world. To get an up-to-date picture of diagnostic strategies employed we sent out a survey to all participating centres of the International Paediatric Brugada Registry. The results are now available, showing, on the whole, an increasing consensus on certain diagnostic practises, such as the drug challenge testing, and a strong increase in family screening. Genetic testing is becoming increasingly important and is widely used. However, much has still to be learned, before we can interpret many of these results with certainty.
The International Paediatric Brugada Registry strives to provide data to fill this gap in knowledge. In 2024 the first big datasets will be ready for analysis.
SADS UK are pleased to have provided funding to support this vital research.
Thank you to all our contributing authors:
Mitchell Cohen MD
Co-Director of the Heart Center
Chief, Pediatric Cardiology
Inova L.J. Murphy Children’s Hospital
Fairfax, USA
Rafael Correa
Cardiologia Pediatrica
Clinica CardioVID
Medellín, Colombia
Anne Fournier, MD
Department of Cardiology, Section Électrophysiologie
CHU Sainte-Justine
Montréal, Canada
Amalia Glucksberg-Stefani, MD
Kinderkardiologie
Kantonsspital St. Gallen
St. Gallen, Switzerland
Cecilia Gonzalez Corcia, MD
Department of Paediatric Cardiology
Bristol Royal Hospital for Children
Bristol, United Kingdom
Adele Greyling, MD
Paediatric Cardiology and Electrophysiology
Mediclinic Vergelegen
Cape Town, South Africa
Robert Murray Hamilton, MD, MHSc
Professor and Senior Associate Scientist
The Labatt Family Heart Center, Department of Pediatrics and Translational Medicine
The Hospital for Sick Children and University of Toronto
Toronto, Canada
Janneke A.E. Kammeraad, MD, PhD
Department of pediatric cardiology
Erasmus MC – Sophia Children’s Hospital
Rotterdam, The Netherlands
Ulrich Krause, MD
Department of Pediatric Cardiology, Intensive Care Medicine and Neonatology
University Medical Center, Georg-August-University
Göttingen, Germany
Tomasz M Ksiazczyk, MD, PhD
Department of Pediatric Cardiology and General Pediatrics
Medical University of Warsaw
Warsaw, Poland
Sit-yee Kwok, MSc, MBChB
Cardiology Centre, Department of Paediatrics and Adolescent Medicine
Hong Kong Children's Hospital
Hong Kong SAR, China
Andrew Landstrom, MD, PhD Director, Duke Pediatric Research Scholars Program
Associate Professor
Department of Pediatrics, Division of Cardiology
Department of Cell Biology Duke University School of Medicine
Durham, USA
Karen A McLeod, MD
Royal Hospital for Children
Glasgow, UK
Elena Montanes, MD
Department of Pediatric Cardiology
Hospital 12 de Octubre
Madrid, Spain
Senem Özgür
Department of Pediatric Arrhythmia and Electrophysiology
Dr. Sami Ulus Children's Hospital
Health Sciences University
Ankara, Turkey
William Regan, MBChB
Evelina London Children’s Hospital
Department of Paediatric Cardiology
London, United Kingdom
Shubhayan Sanatani, Prof., MD, BSc
Division of Cardiology
Department of Pediatrics, Faculty of Medicine, University of British Columbia
Vancouver, Canada
Gary Tse, MD
1 Tianjin Key Laboratory of Ionic-Molecular Function of Cardiovascular Disease, Department of Cardiology, Tianjin Institute of Cardiology, Second Hospital of Tianjin Medical University Tianjin, China. 2. School of Nursing and Health Studies, Hong Kong Metropolitan University
Hong Kong, China.
Gregory Webster, MD, MPH
Assistant Professor of Pediatrics (Cardiology)
Ann & Robert H. Lurie Children’s Hospital of Chicago
Northwestern University Feinberg School of Medicine
Chicago, USA
Cordula M Wolf, MD
Assistant Professor
Department of Paediatric Cardiology
German Heart Centre Munich
Munich, Germany
Norah Yap
Department of Paediatric Cardiology
Southampton Children’s Hospital Southampton, United Kingdom