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International Paediatric Brugada Registry

January 29, 2024

International Paediatric Brugada Registry: Survey of the Diagnostic approaches around the world

Presently, it is still debated how to correctly diagnose children with Brugada syndrome and how to assess their risk for dangerous arrhythmic events. Many different strategies exist around the world. To get an up-to-date picture of diagnostic strategies employed we sent out a survey to all participating centres of the International Paediatric Brugada Registry. The results are now available, showing, on the whole, an increasing consensus on certain diagnostic practises, such as the drug challenge testing, and a strong increase in family screening. Genetic testing is becoming increasingly important and is widely used. However, much has still to be learned, before we can interpret many of these results with certainty.

The International Paediatric Brugada Registry strives to provide data to fill this gap in knowledge. In 2024 the first big datasets will be ready for analysis.

SADS UK are pleased to have provided funding to support this vital research.

Thank you to all our contributing authors:

Mitchell Cohen MD

Co-Director of the Heart Center

Chief, Pediatric Cardiology

Inova L.J. Murphy Children’s Hospital

Fairfax, USA

Rafael Correa

Cardiologia Pediatrica

Clinica CardioVID

Medellín, Colombia

Anne Fournier, MD

Department of Cardiology, Section Électrophysiologie

CHU Sainte-Justine

Montréal, Canada

Amalia Glucksberg-Stefani, MD


Kantonsspital St. Gallen

St. Gallen, Switzerland

Cecilia Gonzalez Corcia, MD

Department of Paediatric Cardiology

Bristol Royal Hospital for Children

Bristol, United Kingdom

Adele Greyling, MD

Paediatric Cardiology and Electrophysiology

Mediclinic Vergelegen

Cape Town, South Africa

Robert Murray Hamilton, MD, MHSc

Professor and Senior Associate Scientist

The Labatt Family Heart Center, Department of Pediatrics and Translational Medicine

The Hospital for Sick Children and University of Toronto

Toronto, Canada

Janneke A.E. Kammeraad, MD, PhD

Department of pediatric cardiology

Erasmus MC – Sophia Children’s Hospital

Rotterdam, The Netherlands

Ulrich Krause, MD

Department of Pediatric Cardiology, Intensive Care Medicine and Neonatology

University Medical Center, Georg-August-University

Göttingen, Germany

Tomasz M Ksiazczyk, MD, PhD

Department of Pediatric Cardiology and General Pediatrics

Medical University of Warsaw

Warsaw, Poland

Sit-yee Kwok, MSc, MBChB

Cardiology Centre, Department of Paediatrics and Adolescent Medicine

Hong Kong Children's Hospital

Hong Kong SAR, China

Andrew Landstrom, MD, PhD Director, Duke Pediatric Research Scholars Program

Associate Professor

Department of Pediatrics, Division of Cardiology

Department of Cell Biology Duke University School of Medicine

Durham, USA

Karen A McLeod, MD

Royal Hospital for Children

Glasgow, UK

Elena Montanes, MD

Department of Pediatric Cardiology

Hospital 12 de Octubre

Madrid, Spain

Senem Özgür

Department of Pediatric Arrhythmia and Electrophysiology

Dr. Sami Ulus Children's Hospital

Health Sciences University

Ankara, Turkey

William Regan, MBChB

Evelina London Children’s Hospital

Department of Paediatric Cardiology

London, United Kingdom

Shubhayan Sanatani, Prof., MD, BSc

Division of Cardiology

Department of Pediatrics, Faculty of Medicine, University of British Columbia

Vancouver, Canada

Gary Tse, MD

1 Tianjin Key Laboratory of Ionic-Molecular Function of Cardiovascular Disease, Department of Cardiology, Tianjin Institute of Cardiology, Second Hospital of Tianjin Medical University Tianjin, China. 2. School of Nursing and Health Studies, Hong Kong Metropolitan University

Hong Kong, China.

Gregory Webster, MD, MPH

Assistant Professor of Pediatrics (Cardiology)

Ann & Robert H. Lurie Children’s Hospital of Chicago

Northwestern University Feinberg School of Medicine

Chicago, USA

Cordula M Wolf, MD

Assistant Professor

Department of Paediatric Cardiology

German Heart Centre Munich

Munich, Germany

Norah Yap

Department of Paediatric Cardiology

Southampton Children’s Hospital Southampton, United Kingdom

Tagged in: Cardiac Arrest, News

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