International Paediatric Brugada Registry

International Paediatric Brugada Registry: Survey of the Diagnostic approaches around the world

Presently, it is still debated how to correctly diagnose children with Brugada syndrome and how to assess their risk for dangerous arrhythmic events. Many different strategies exist around the world. To get an up-to-date picture of diagnostic strategies employed we sent out a survey to all participating centres of the International Paediatric Brugada Registry. The results are now available, showing, on the whole, an increasing consensus on certain diagnostic practises, such as the drug challenge testing, and a strong increase in family screening. Genetic testing is becoming increasingly important and is widely used. However, much has still to be learned, before we can interpret many of these results with certainty.

The International Paediatric Brugada Registry strives to provide data to fill this gap in knowledge. In 2024 the first big datasets will be ready for analysis.

SADS UK are pleased to have provided funding to support this vital research.

Bleed kits

There have been horrendous stories about stabbings in London and other cities; most recently a young boy Alfie Lewis sadly died after being stabbed in Leeds.

SADS UK have Bleed Kits which are available to go into the SADS UK cabinet, together with defibrillator. The Bleed Kit is also available separately for purchase, the bleed kits are for severe bleeding, as in a stabbing or traumatic accident causing chaotic bleeding.

Abolishing VAT on defibs

During September and Shoctober, the cardiac charity SADS UK is doubling down on our plea to Government to abolish VAT on defibrillators, enabling wider access to defibrillators and consequently saving more lives.    Contact SADS UK if you would be happy to speak with the media.  Supporting the BHTA - SADS UK, members and supporters are writing to their MPs urging their support for defibrillators to be VAT exempt.   SADS UK will provide a template letter and to help you get your story to your local MP.  Email:  [email protected]  

Defibrillator donated in memory of Clare Yates

SADS UK are pleased to have supported Mark Yates in donating a defibrillator to Buttercup Tea Rooms, Billesdon, in loving memory of his wife Clare who passed away in November 2021. Clare worked at Buttercups Tea Room and Mark wanted to help safeguard her work colleagues and equally the significant number of visitors they have on site.

Annual Joe Spooner Darts Tournament 2022

SADS UK thanks Tracey, Stephen and everyone who supported the Annual Joe Spooner Darts Tournament. Joe tragically passed away aged 15 in 2005 and since his death Tracey and Stephen have supported SADS UK and raised awareness and funds in his memory which has enabled over 35 defibrillators to be donated to schools and communities in memory of Joe to help save lives.

FEBRUARY IS NATIONAL HEART MONTH

February 2022 is National Heart Month  - an annual event to raise awareness and encourage people to look after their heart.  SADS UK invites members to get involved in a number of different ways : raising awareness and funds to place a Community Public Access Defibrillator to help save lives, Wear it Red Day on 14th February 2022, hold a fundraising event for SADS UK on Valentines Day, share your story on social media and tag @SADSUK. ♥