Stride with SADS UK in Hyde Park, London to raise awareness and funds to STOP SADS – Sunday 14th May 2023 – more details coming soon!


You may like to set up a SADS UK Memorial Fund in memory of your child, friend or loved one, Members have found this helpful as a means of keeping the memory of their child or spouse alive and friends and family donate at special times, such as Christmas, Anniversaries and Birthdays. Just let SADS UK know, email: [email protected]

SADS UK has a memorial gallery (link to memorial gallery) to remember loved ones and place a heartfelt tribute to people who have died prematurely from SADS. If you would like to include a photo of your loved one please email us a photo along with your tribute to them.

You may like to set up a Memorial Page on Just Giving. You can add photos and updates to the page and it is a nice way to let people know why you are raising awareness and funds for SADS UK. If you would like to follow the simple steps on the link below the page will be set up for you. JustGiving lets you upload photos and friends and family can contribute with their heartfelt messages and donate online if they wish.

Many SADS UK members set up funds in memory of their loved ones and the funds raised/donated can be ring-fenced for a project important to you; it could be for raising awareness, research or cardiac equipment, such as defibrillators in your community.

Future funds raised could be used for the following projects:

  • Research into SADS. SADS UK funds research into Sudden Arrhythmic Death Syndrome (SADS) to discover more about how we can prevent these devastating deaths; working with Papworth Heart Hospital, the Institute of Medical Genetics at the University Hospital of Wales in Cardiff, Bristol Heart Institute and other tertiary hospitals around the country.
  • Research
  • Study into out of hospital cardiac arrest. SADS UK is supporting a study at the Essex Cardiothoracic Centre, looking at ways to treat people preserving cognitive function for people who survive and improving the wellbeing of survivors.
  • Improving psycho-social and cognitive outcomes
  • Towards the purchase of a defibrillator for a school or organisation which can be kept either inside the building or on an outside wall so that the community can also access the defibrillator. If it’s sited on an outside wall this is known as a Community Public Access Defibrillator (CPAD).
  • Defibrillators
  • Counselling support – SADS UK organises counselling and an annual subsidised Retreat for people affected by SADS.
  • Support
  • Raising awareness of SADS so that the charity can continue to deliver well what we already deliver, providing the charity with the opportunity to plan longer term.
  • Medical

Many people have written tributes for the SADS UK newsletter and website Memorial Gallery if you’d like to do this at some time we’d be pleased to include this. Just let us know if you’d like to set up a memorial fund, and we can arrange this for you.


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