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You can keep up to date with the work of the charity by reading our newsletters. All members automatically receive a copy and it is posted on this website - just click on the appropriate issue.

All the latest issues are in pdf format to make it easier for you to read and print.

You will need a pdf reader such as Acrobat in order to read these files but this can be downloaded for free from the Acrobat website. click here to go to the Acrobat website

If you'd like to recieve a copies of newsletters as they are released please email SADS UK with your postal address Click here to send email

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Back Issues:

January 2005 pdf
October 2004 pdf
August 2004 pdf
March 2004
January 2004
November 2003
September 2003
June 2003
April 2003
February 2003
September 2002
Summer 2002
Spring 2002


News > Parliamentary  

AED Campaign (Automated External Defibrillator)
SADS UK gains Parliamentary support for defibrillators to be placed in schools.Write to your MP or attend their surgery and ask them to sign their support of EDM 395, Cardiac Arrest in schools. Ask them to back our Campaign by writing to Government urging them to make AED's available in all schools. To get details of you MP see www.writetothem.com - or ask SADS UK to obtain this for you.

Read more about the AED campaign here and why you should become involved.

Template letter to write to your local MP

EDM 395

Duncan Goodhew MBE supports widespread placement of AED's

AAAW 2008 - 9th - 15th June
SADS UK is again supporting Arrhythmia Alliance Awareness Week (AAAW) 08 which marks the fifth anniversary of the Arrhythmia Awareness Week Partners annual awareness week.

A date has been set for 9th-15th June, with World Heart Rhythm Awareness Day falling again on 13th June. Charitable organisations from across the world, patients, carers and patient groups are encouraged to hold awareness events on this day to raise global awareness.

If you are interested in taking part, please contact us info@sadsuk.org

Calendar of events during AAAW

Monday -

Tuesday – SADS UK Balloon Launch

Wednesday – Lunchtime Reception and Regional Meeting - Holyrood, Scotland

Thursday –

Friday – World Heart Rhythm Day

Saturday –

Sunday - Europe AF Conference & AF Patients Day 
               SADS UK Candle Lighting

AAAW 2007


Ellen Berry, BHF - Frank Lester, Anne Jolly, Pam and Bob Swain SADS UK - Dr Andrew Staniforth - Jamie Waterall

Charity members wrote to their MPs to raise awareness and to further to implementation of the NSF for CHHD Chapter 8 – Arrhythmias and Sudden Cardiac Death in primary care. They took booklets to doctors surgeries and medical establishments to highlight the guidelines in this field. They wrote and met with their MPs to gain their support in writing to the Minister responsible, Rosie Winterton, asking what support her Department had mad available to support Primary Care Trusts to implement Chapter 8. Letters were written to MPs in England, AMs in Wales, MSPs in Scotland and the Northern Ireland Assembly.

The week was focussed on raising awareness about cardiac arrhythmia and many hospitals took part by holding stands at their hospital displaying information. SADS UK personnel attended a Parliamentary reception during AAAW on the 13th June providing information about SADS and highlighting the need for health professionals to be aware of cardiac conditions that could be life-threatening if not treated. The day was designated World Heart Rhythm Awareness Day.

Arrhythmia Awareness Campaigns gain the Prime Minister and MP’s support
The Arrhythmia Awareness Campaign in 2006 was immensely successful with events raising awareness being held by the charity’s, members and hospitals countrywide. Many of you have helped, and 165 events around the country took place. We would like to double this figure for 2007.See Prime Minister Tony Blair’s letter of support and reception given by Cherie Blair, together with letters of endorsement of the Arrhythmia Awareness Campaign by some of the many MP’s who support the work http://www.stars.org.uk/aaaw/support-political.html

The Annual Arrhythmia Awareness Campaigns began with
Arrhythmia Awareness Week 12th to 18th May 2004
A Parliamentary Reception on May 12th 2004 launched Arrhythmia Awareness Week

An Early Day Motion was tabled to include targets for the diagnosis and treatment of arrhythmias within the National Service Framework. SADS UK are working in partnership with STARS, BCPA and the Cardiomyopathy Association; our common aims are to improve the lives of individuals and families who have been impacted as a consequence of suffering cardiac arrhythmia. An arrhythmia is a medical term used to describe a heart that beats too fast or too slow.  Subsequent to the Campaign the Department of Health published NSF Chapter 8 Arrhythmias and Sudden Cardiac Death, guidelines to help save lives and improve the lives of those living with arrhythmia.

The campaign was sponsored by Medtronic: the market leader in heart rate diagnostic tools and pacemakers.

SADSUK page on how you can support AAAW

The Official page of Arrhythmia Awareness Week

Letters From Parliament

 

 



News > Awards  

SADS UK Members Debbie Hughes & Kim Collins - Volunteers of the Year, Eastbourne - Word Doc (56kb)

Geoff Hoare Nominated for UK Volunteer of the year - Word Doc (109kb)

Anne Jolly Recieves Honor from Mayor (1.2meg)

Anne Jolly Recieves Special Civic Award

Page 1 (232kb)
Page 2 (242kb)

Brentwood Gazette Febuary 2003 (673kb)

Brentwood Gazette March 2003 (673kb)

Weekly News Febuary 2003 (807kb)

 




Last updated 20th March 2008 | © 2008 Ashley Jolly SAD Trust (SADS UK)
www.sadsuk.org.uk